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In this video, Anne talks about her role as a follow up nurse at Ninewells Hospital in Dundee. She sees patients after they've been discharged from hospital and talks about the common issues patients and families face during this time.
What is a diary? A diary is a booklet written for patients about their time in Intensive Care. Some Intensive Care Units use patient diaries and some don’t. They’ve been used for a number of years in other countries, but are only just beginning to be used in the UK. More research is needed to find out if and how they help. Why might (some) patients find a diary helpful? Patients often can’t remember how they ended up in Intensive Care, or what happened while...
What is a diary? A diary is a booklet written for patients about their time in Intensive Care. Some Intensive Care Units use patient diaries and some don’t. They’ve been used for a number of years in other countries, but are only just beginning to be used in the UK. More research is needed to find out if and how they help. Why might (some) patients find a diary helpful? You might not be able to remember what happened to you in Intensive Care, or have strange dreams or...
How can I find out more about what happened in Intensive Care? It can depend on the type and level of information you’re looking for. Some people are more comfortable with a basic understanding, whereas others prefer to have a more detailed medical explanation. It’s completely up to you. You may find that the type of information you would like changes as you recover. Here are some things you can do that might help. Ask your family and friends They will be able...
Many people who come into Intensive Care have pre-existing health conditions. Part of your recovery will likely include understanding and dealing with those conditions too.This link will take you to the British Medical Journal's website.There are links to patient information leaflets on a range of conditions. They have been written in clear, easily understandable language.
Who can I ask about my loved one's condition? The nurse who is looking after your family member will have a very clear understanding of your loved one's condition. She/he will be able to explain things to you in easily understandable language and will be happy to answer any questions you might have. We do understand that visiting a loved one in Intensive Care can be very upsetting and that it can sometimes be difficult to remember what you've been told.Please...
This link will take you to the Patient.co.uk website. There is a huge amount of easily understandable and trustworthy general information and advice on health issues and general wellbeing. There are also blogs and forums where you can hear more about other peoples' experiences.
Some people want to see their medical notes, so that they can make sense of their care or treatment, and why they needed it.This link will take you to the NHS Choices website. It gives you information on how to get permission to look at your medical notes (including the forms you will need to fill in and whether you might have to pay a small fee).
Once patients are transferred to the wards, they often "come to" and have to begin to make sense of what's happened to them. Not remembering (amnesia) how you ended up in Intensive Care and what happened while you were there is extremely common. Patients sometimes "lose" the few days before ending up in Intensive Care, even though they were comparatively well at that time. Not remembering is likely to be a combination of how ill you were, the nature of your...